In the words of Veronica Corningstone, thanks for stopping by! As a visitor here, you a part of this community.
Perhaps you're like me, a parent with a rare disease trying to figure out how to parent and deal with life altering circumstances and many new realities. Maybe you're a fellow advocate or are exploring advocacy. You might just happen to be passing through, looking for some perspective or insight.
Regardless, you are not alone. I hope you can learn and laugh with me through my website, blog, and social media accounts. Find something you connect with. Feel something that resonates with you.