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RARE DISEASE - altered my being


DAD - what I love being


ADVOCATE - what I aim to be


Rare Disease DadVocate

Rare Disease DadVocateRare Disease DadVocateRare Disease DadVocate
Contact Me

RARE DISEASE - altered my being


DAD - what I love being


ADVOCATE - what I aim to be


Rare Disease DadVocate

Rare Disease DadVocateRare Disease DadVocateRare Disease DadVocate
Contact Me

Welcome

In the words of Veronica Corningstone, thanks for stopping by! As a visitor here, you a part of this community. 


Perhaps you're like me, a parent with a rare disease trying to figure out how to parent and deal with life altering circumstances and many new realities. Maybe you're a fellow advocate or are exploring advocacy. You might just happen to be passing through, looking for some perspective or insight.


Regardless, you are not alone. I hope you can learn and laugh with me through my website, blog, and social media accounts. Find something you connect with. Feel something that resonates with you.  

Owning My Story - Blogs

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