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Owning My Story - Publications

  Rare Revolution Magazine 

Adam Johnson & David Ross - Advice From Rare Dads: Top Tips For Rare Parents 

In a collaborative project with Rare Revolution Magazine, David and Adam put their heads together to make a top tips for parenting as a rare disease patient list. You can find more resources like this at RareRevolutionMagazine.com. 

September 17, 2021

Thank You

Being able to share part of my story through publications such as these is certainly an honor. Thank you to all those who I've had the opportunity to collaborate with on these projects, from those who lead the way to those who put up with my nonsense while we put our heads together. 


Please support these partners by sharing and continuing to read their work.  

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