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Owning My Story - Podcast Guest Appearances

  SIMPLY UNBREAKABLE PODCAST  

with hosts 

Kristy Dickinson & Brenda Agnew 

 Being a Father Diagnosed with a Rare Disease with Adam Johnson 


October 18, 2021

  PATIENTS RISING PODCAST  

Adam Johnson - Patient Correspondent 

Following the Alzheimer's Drug Debate discussion (near the 33 minute mark) I highlight issues with insurance companies & durable medical equipment suppliers while advocating for the Medical Nutrition Equity Act & the Orphan Products Grant Program.


July 23, 2021

 ENERGY IN ACTION 

with host Stephanie Tomlinson 

Owning My Story...The DadVocate


February 14, 2021 

My Rare Disease (Empowering, educating, & raising awareness); a mic & stethoscope; yellow background

 MY RARE DISEASE PODCAST

 with host Katy Baker 

Mitochondrial Myopathy - Adam Johnson 

(DadVocate)

 January 21, 2021 

Text: "Adam 'DadVocate' Johnson"; yellow fist that says "DadVocate" around it; photo of me & my kids

ONCE UPON A GENE  

EP 052 with host Effie Parks 

Adam Johnson - Rare Disease Dad on Mitochondrial Myopathy & Owning Your Story 

October 15, 2020

Thank You

Being a podcast guest has been an incredible avenue to explore as I continue the work to Own My Story. These guest appearances have led to many connections in the rare disease and mitochondrial disease communities, where I've been able to help others while being helped myself. 

Thank you for listening, and a huge thank you to the hosts who have helped me share about my journey on their platforms. I appreciate the work they do to support and build their respective communities. Please support them by listening to, subscribing to, and leaving reviews for their podcasts! 

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